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On the other hand, perhaps only people meaning to throw others off will use the emoticons, so no one will think they are used honestly. Overall, I am pleased that the developers have been giving more proof of their endeavors and given us screenshots.
The small groups comprised geographically diverse participants so each could learn from the others’ experience and point of view.The GFBR holds an annual meeting centered on a key emerging theme of significance for global health research.Pregnancy is a critical focus for global health research that has not received sufficient international attention and consideration from the bioethics, clinical and policy-making communities working together.Questions about the appropriateness and sensitivity of research and guidelines to the local context are often most acute for research conducted in low- and middle-income countries (LMICs) and have resulted in a long history of concerns about exploitation and unethical practice .The Global Forum on Bioethics in Research (GFBR) was created in the late 1990s by a group of global health research funders as a way of addressing this concern, seeking to amplify the voices of LMIC partners and facilitate better relationships with them .Pregnant women are typically excluded from research because they are categorized as “vulnerable”, which has led to less research being conducted with pregnant women.
This ironically results in the population labelled as “vulnerable” actually being put at risk of potentially harmful clinical interventions, under-treatment, or failed prevention of maternal (and sometimes fetal) disease because we lack a solid evidence base.
For example, a lack of community engagement about research can lead to significant distrust and reluctance to participate in vaccine trials, as was evident during the Ebola outbreak .
Despite the existence of international guidelines on many aspects of ethical research, these are not always sufficient in themselves; their effectiveness depends on the systems in which they are implemented.
A dedicated session on policy and regulation gave four perspectives on the issue of research in pregnancy: a global view, focusing on the Council of International Organizations of Medical Sciences guidelines on research with pregnant and breastfeeding women, a view through the lens of US regulation, a regional view from Latin America, and a local perspective drawing on the experience of conducting research on the Thai-Burmese border.
Despite the breadth of perspectives presented, a strong cross-cultural consensus emerged that the policy of ‘exclusion by default’ needs to change and that pregnant women should be included in research unless there are valid reasons to specifically exclude them.
GFBR participants agreed that alternative categories to the traditional classification as “vulnerable” are required: pregnant women are not vulnerable in any cognitive or physical sense, but they are a special research population since pregnancy does pose scientific challenges and specific circumstances, such as risk of harm to the fetus, which may require special protections.